Sickle Cell Trait Resources

What to know

ÐÇ¿ÕÓéÀÖ¹ÙÍø, together with the American Society of Hematology (ASH) and the Sickle Cell Disease Association of America (SCDAA), created the Sickle Cell Trait Toolkit. The toolkit is a collection of resources to increase understanding of sickle cell trait. These fact sheets are for several different audiences, including patients and their families; trainers and coaches; and healthcare providers.

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Healthcare providers

Sickle Cell Trait and Splenic Infarct: Information for Healthcare Providers Factsheet thumbnail

Sickle Cell Trait and Splenic Infarct: Information for Healthcare Providers

Learn how providers can care for a person with sickle cell trait who shows signs of splenic infarct.
Sickle Cell Trait and Diabetes Tests: What Every Healthcare Provider Should Know - factsheet thumbnail

Sickle Cell Trait and Diabetes Tests: What Every Healthcare Provider Should Know

Learn how providers can accurately test people with sickle cell trait for diabetes and pre-diabetes.
Picture of a fact sheet titled Sickle Cell Trait and Hematuria: Information for Healthcare Providers.

Sickle Cell Trait and Hematuria: Information for Healthcare Providers

Learn what providers can do when people with sickle cell trait show signs of hematuria.
Sickle Cell Trait and Glaucoma Post-Hyphema: Tips to Protect Your Patient’s Vision - Factsheet thumbnail

Sickle Cell Trait and Glaucoma Post-Hyphema: Tips to Protect Your Patient’s Vision

Learn how providers can protect the vision of a patient with sickle cell trait after an eye injury.

Trainers and coaches

Team Doctors (trainers): Don’t let your athletes get sidelined by sickle cell trait! Help them play it safe with these helpful tips! fact sheet thumbnail

Team doctors (trainers): Don’t let your athletes get sidelined by sickle cell trait! Help them play it safe with these helpful tips!

Learn how team doctors and trainers can protect the health of athletes with sickle cell trait.
Coaches: Don’t let your athletes get sidelined by sickle cell trait! Help them play it safe with these helpful tips! - factsheet thumbnail

Coaches: Don’t let your athletes get sidelined by sickle cell trait! Help them play it safe with these helpful tips!

Learn how coaches can protect the health of athletes with sickle cell trait with these helpful tips.

Patients and family members

What You Should Know About Sickle Cell Trait factsheet thumbnail

What You Should Know About Sickle Cell Trait

Basic facts about sickle cell trait.
Get Screened to Know Your Sickle Cell Status factsheet thumbnail

Get Screened to Know Your Sickle Cell Status

Learn why and how to get screened for sickle cell trait.
Get Screened for Sickle Cell Trait - infographic thumbnail

Infographic: Get Screened for Sickle Cell Trait

Did you know there's more than one way to inherit sickle cell trait? Learn how it is inherited.
Sickle Cell Trait and Blood, Organ and Tissue Donation: Yes You Can! - factsheet thumbnail

Sickle Cell Trait and Blood, Organ, and Tissue Donation: Yes You Can!

Learn if you can donate blood, organs, or tissues to help save lives if you have sickle cell trait.
Sickle Cell Trait and Damage to the Spleen: Get the Facts - fact sheet thumbnail

Sickle Cell Trait and Damage to the Spleen: Get the Facts

Learn what to do if you have sickle cell trait and think you may have a problem with your spleen.
What You Should Know About Diabetes Tests if You Have Sickle Cell Trait - factsheet thumbnail

What You Should Know About Diabetes Tests if You Have Sickle Cell Trait

Learn why to tell your doctor about your trait status and how it might affect your A1C test results.
Blood in Your Urine? Don’t Delay, See Your Healthcare Provider Today! Fact sheet image thumbnail

Blood in Your Urine? Don’t Delay, See Your Healthcare Provider Today!

Learn what to do if you have sickle cell trait and have blood in your urine.
Eye Problems and Sickle Cell Trait: Learn How You Can Help Protect Your Vision Fact Sheet Thumbnail

Eye Problems and Sickle Cell Trait: Learn How You Can Help Protect Your Vision

Learn what to do if you have sickle cell trait to protect your vision before an eye injury occurs.
Athletes: Don’t get sidelined by sickle cell trait! Play it safe with these helpful tips! - factsheet thumbnail

Athletes: Don’t get sidelined by sickle cell trait! Play it safe with these helpful tips!

Learn ways athletes with sickle cell trait can stay safe while engaging in physical activity.

Additional Resources

Sickle Cell Disease Fact Sheets Collage

Fact Sheets on Sickle Cell Disease

Free materials for you: Fact sheets, tip sheets, and other educational materials.
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Content Source:
National Center on Birth Defects and Developmental Disabilities (NCBDDD)